Cf patients dating each other
Talk with your doctor and family members or friends about deciding to join a study.To learn more about this study, you or your doctor may contact the study research staff using the contacts provided below. This study will examine the experience of disclosing a cystic fibrosis (CF) diagnosis to a dating partner.People between 21 and 35 years of age with CF who have been in at least one dating relationship may be eligible for this study.The interviews will explore general experiences of disclosure to dating partners, will focus on selective disclosure of certain information to certain recipients, and will explore the implications of the disclosure or non-disclosure experiences.The qualitative interviews will be transcribed and subjected to thematic analysis, which will identify common themes across interviews.The safety and scientific validity of this study is the responsibility of the study sponsor and investigators. CF has implications for potential life partners (issues of fertility, decreased life span and an increasing need for medical management with age) that may make disclosure particularly sensitive.
Cystic Fibrosis Canada now urges patients to not attend its meetings or events where more than one person with cystic fibrosis may be present due to the risk of cross infection with potentially deadly bacteria in newly adopted infection control guidelines.
An understanding of the disclosure process experienced by persons with cystic fibrosis may provide insight into ways health care practitioners can support their patients during this process.
Choosing to participate in a study is an important personal decision.
“We really need to be more vigilant,” said local chapter president Katie Schulz.
“We’re really trying to protect the health of everybody with cystic fibrosis.” Cystic Fibrosis Canada, which funds research and supports care, reviewed the latest scientific data about disease transmission and looked at policies for other organizations.
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